Calories
Hi Friends,
I was beginning to doubt that anyone reads this thing anymore, it's been awhile since anyone has commented! ;) I won't write much tonight, I'm not really in the mood again...I've not been feeling so happy these last days...too much to do, and being forced to "grow up" too fast. Sometimes I wish I was 5 years old again.
Pam and I had lunch with mom today, and she did pretty well...tonight the PCT told me she'd met her caloric intake "quota" for the day...she just didn't drink enough fluids, so they supplemented with some water in her tube, but otherwise no tube feeding! :) She had a LONG day of therapy today...breakfast at 8am, and then PT, OT, a visit from the psychologist, and speech. The psychologist talked to her alone for a little while and then sat down with all three of us (Pam and I) to discuss how mom was doing from his standpoint...he thinks she is improving nicely, and that though she has teary moments that they seem fewer and farther between. We talked a little about her medications, and he mentioned perhaps trying to get her off the Seroquel before discharge (this is the one they started to help her sleep when all the other sleep aids failed...but she's been sleeping better at night, so it may be that her bio-rhythms are regulating a bit...it's hard to tell if it's that or the meds). Overall, a nice conversation. Then mom's (and Lilly's) friend Tiffany arrived for a visit, and ended up staying through her speech therapy session. I think mom sometimes gets distracted by wanting so hard to get the right answer that she doesn't concentrate on the questions...I may ask if it is too distracting for us to be there...I don't want to hinder her progress.
Then Pam and I met with Dinh for a bit...I don't feel like writing about this right now, but give me a few days and I'll let you know more. Then we went back in to see mom, and she was semi-napping, so we left to go to Target. I came back afterward, hung out with mom for a bit trying to get her to eat her dinner (she didn't do so well at dinner, but I wonder if she was that hungry after her big lunch...she's not quite used to this yet), and then watched a little TV with her before she told me she was getting tired and I should probably go...she felt INCREDIBLY guilty for asking me to leave (gee, who does that sound like, feeling guilty?), and worried whether or not I had something to do or somewhere to go. I assured her over and over that I was glad she recognized she was tired and needed to rest, that I would be FINE, that I had things to do anyway, that I didn't feel bad about it, and that rest was good for her healing process. She still felt bad about it, though, no matter what I said. I told her she needed to be more selfish and stop worrying about everyone else, to put herself first for now. She's so damn cute.
Alright, off to get ready for bed. Must work tomorrow and the next day. Please keep sending me your support and love, I still need it very much.
I was beginning to doubt that anyone reads this thing anymore, it's been awhile since anyone has commented! ;) I won't write much tonight, I'm not really in the mood again...I've not been feeling so happy these last days...too much to do, and being forced to "grow up" too fast. Sometimes I wish I was 5 years old again.
Pam and I had lunch with mom today, and she did pretty well...tonight the PCT told me she'd met her caloric intake "quota" for the day...she just didn't drink enough fluids, so they supplemented with some water in her tube, but otherwise no tube feeding! :) She had a LONG day of therapy today...breakfast at 8am, and then PT, OT, a visit from the psychologist, and speech. The psychologist talked to her alone for a little while and then sat down with all three of us (Pam and I) to discuss how mom was doing from his standpoint...he thinks she is improving nicely, and that though she has teary moments that they seem fewer and farther between. We talked a little about her medications, and he mentioned perhaps trying to get her off the Seroquel before discharge (this is the one they started to help her sleep when all the other sleep aids failed...but she's been sleeping better at night, so it may be that her bio-rhythms are regulating a bit...it's hard to tell if it's that or the meds). Overall, a nice conversation. Then mom's (and Lilly's) friend Tiffany arrived for a visit, and ended up staying through her speech therapy session. I think mom sometimes gets distracted by wanting so hard to get the right answer that she doesn't concentrate on the questions...I may ask if it is too distracting for us to be there...I don't want to hinder her progress.
Then Pam and I met with Dinh for a bit...I don't feel like writing about this right now, but give me a few days and I'll let you know more. Then we went back in to see mom, and she was semi-napping, so we left to go to Target. I came back afterward, hung out with mom for a bit trying to get her to eat her dinner (she didn't do so well at dinner, but I wonder if she was that hungry after her big lunch...she's not quite used to this yet), and then watched a little TV with her before she told me she was getting tired and I should probably go...she felt INCREDIBLY guilty for asking me to leave (gee, who does that sound like, feeling guilty?), and worried whether or not I had something to do or somewhere to go. I assured her over and over that I was glad she recognized she was tired and needed to rest, that I would be FINE, that I had things to do anyway, that I didn't feel bad about it, and that rest was good for her healing process. She still felt bad about it, though, no matter what I said. I told her she needed to be more selfish and stop worrying about everyone else, to put herself first for now. She's so damn cute.
Alright, off to get ready for bed. Must work tomorrow and the next day. Please keep sending me your support and love, I still need it very much.
Comments
I am so glad that your Mom had a good day and that you got through today. Remember, take one day at a time:) I will see you tomorrow and looking forward to spending time with your Mom on Wednesday!
Love, Jillian
Peace, Pat Hunter.
Kelly
I know it's been awhile but I do read your blog regularly. I'm so relieved to read that your mom is doing well and responding to the therapy. Not that she'll remember me but please let her know that my family and I send all the love and prayers out to you and your mom.