Heartbreak

Hi Friends,

I don't have to tell you it was another crazy day on Labor and Delivery, because it's astonishing if it isn't lately. It was busy, and now it's done, and I'm exhausted. Enough said.

Pam and Jillian were able to spend some time with mom this afternoon, which was so nice of them, and they gave an excellent report of how mom did in speech therapy. Jillian did an ENORMOUSLY HUGE favor for me today, too...I don't need to get into detail...but I will tell you I absolutely don't know what I would do without her, and I owe her SO much. Seriously.

Stef and I went over after work (thanks for coming with me, Stef!) to see mom...she was actually awake, and when we asked her how she was, she said she wasn't doing that well. She said she was getting really tired of being there, and wished she could go home. We had a discussion about how right now she still needs intensive therapy, that she still has problems with her thinking and memory because of the brain injury, and how this is the best, safest place for her to be. I told her the date today, and told her that Nov. 30 is the date they plan to let her leave there. She remarked on how long of a time that was, and then we talked about how much it sucks, and how we didn't deserve any of this happening to us. We talked about how it was just a terrible accident, and that it wasn't anyone's fault, but that it happened, and we have to keep moving forward. I told her it was okay to be sad and mad about it, and that those were perfectly normal feelings for both of us to have, but that we couldn't let them get in the way of moving forward. She even said it herself...that we just have to do it, and get over it, "damnit." We talked about how we have to keep laughing, and that we are not alone in this process, that we have SO many friends and family members who are helping us and supporting us through everything.

For those of you I haven't talked to in person or through email (most of you), I think it's time I let you know...I have come to the agonizing, horrible realization that at this time, I simply don't have the resources available to bring mom home with me once she is discharged from RIC. No one can imagine how truly awful it is to have to come to terms with that unless one has been through something similar, and as you know I have been reluctant to even write about it here because everytime I think about it, I can't bear it. My mom is 52 years old...she doesn't belong in a nursing home. And yet that is the only choice I face at this time...it's the only safe thing to do...I cannot be with her 24 hours a day (which is what she needs), and with the precariousness of her situation right now (mobility issues, cognitive impairment, and the HUGE risk of her injuring her brain further because of the craniotomy), this is the lesser of two evils, though not by much. I hate it. I cannot help but feel like a failure as a daughter, even though I know I'm doing the best I can. It just doesn't feel like enough when I have to make this decision.

And so, you can imagine how tonight's conversation makes it about a million times harder...she wants to go home so badly...how am I supposed to tell her she won't be able to do that after she leaves RIC? How? I'm so afraid she's going to hate me, and I wouldn't blame her one bit. The ONLY way I can live with myself (barely) is to think about it as a temporary solution...she won't always need to be there...it's only been two and a half months since her injury (although in a lot of ways it seems like a lifetime), and she is already doing so well. I have to keep reminding myself of this, and keep the faith that she will continue to improve and soon she WILL be able to come home with me safely. This is also where you come in...I desperately need your support in this, and also your continued faith and reassurance that it's temporary...PLEASE. I'm lost without all of you.

Comments

Anonymous said…
Amanda, The Bev I know is so very proud of you and you continue to demonstrate why. You have had to grow up very fast these last couple of months under extreme duress. You have not been given many good options here and you have demonstrated a poise and maturity that is inspiring. Don't beat up on yourself. It WILL be temporary. I have faith in Bev and faith in you. You deserve to be at peace over this and,if she could, your mom would tell you so.
Beth Weisbecker said…
Hi Amanda, We went through a lot of what you're going through with my mother. The one option we found was that if you get a prescription from your doctor that Bev needs 24 hour care, you can get insurance to cover home health care for a month while you are at work. I don't know if that's the case in all states or all insurances, but talk to your doctor. He might know. I also have a friend who is 53 and is in a nursing home right now--a swing bed they call it--until she can go home. She is handling it well because she knows she will go home in a few weeks. If Bev knows she will eventually get to go home, she'll know in her heart this is the right thing and love you more for doing the right thing. This IS only temporary!!! Bev wants to go home again, that will keep her working hard and we all know she knows how to work hard. You are both doing great--don't forget how far you both have come. This is jus another part of the journey and both will come through with flying colors. KEEP THE FAITH!!
Unknown said…
amanda, i know i've said this a thousand times b4 you are the strongest person i know..i really don't know your mother, but i don't think she would think you are a horrible daughter...you are doing what is best for the both of you with the resources you have and that is all anyone can ask.. i've never seen so much love between a mother and daughter..she knows how much you love her, we all do!! keep being strong and don't be so hard on yourself..i know it's easier said then done, but keep the faith..you'll get through this!!

peterson
Stefanie said…
oh sweet amanda......you are doing the right thing. i know you are heartbroken right now. your mom will not hate you.....she loves you. you have to do what is best for her....and you. we are all here for you. i know i havent written as much......but please know that i am only a phone call away....always. i love you.
love-stef
Unknown said…
Andaam - I've been reading, thinking, loving and praying along with you on your whole journey, reading your blog every day, even telling my friends living in or making trips to Chicago to think great thoughts about 'Bev Longo' even though they dont know who she is, just to get some more great energy out there because she would do the same. My parents have also been thinking of her and asking about her and you. With that said, spending what time I did with you and her i can tell you that there's no way ever, EVER that she could possibly even come close to any emotion that's not absolute love for you. She raised you with the same wisdom and values that she holds and boy have you done a great job with that. Sometimes these hard decisions have to be made in life and know that you are doing the thing that is the best for her health which is the absolute most important thing right now. It's heartbreaking, I went thru a similar decision process with Grandma Kurto, and you want to just go into denial that it's not the best thing but it is when 24 hour supervision is necessary. I'm sure you'll find a great place for her and continue to do everything you can for her (which is above and beyond what I've ever seen any of my friends do for a parent), and your friends' love and support will get both of you thru this...and yes, it's just temporary. Also know that what you're carrying with you is heavy, and answers are not always going to be black and white and you cant expect yourself to be all-knowing. The harder the problem the more difficult the decision and all you can do is make a big ol pile of the facts and make the smartest choice for both of you. Even though it seems rough right now, you'll get thru this, you've gotten thru so much already. You're truly one of my heroes.

The ultimate measure of man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy

- Martin Luther King Jr.

Much love,
Kari
Anonymous said…
Amanda,

I have never met you (I work at Coyne at the main campus) and have only met your mom a couple of times. I read this blog almost every day and you are an inspiration to me. I keep my family up to date on the daily developments and your mom and you are in our daily prayers.

I had a friend who had a severe brain injury along with a broken neck and back about seven years ago. I witnessed his long road back and every step of the way the doctors told us what he would never do again. Each step of the way he proved them wrong. It took about a year but he is completely back with us. Anyone who meets him would never know he had been as bad off as he was and your mom is recovering at a faster rate (by far) than he did.

Definitely look at this step as a step closer to bringing her home. Although you don't know me, I have a car and I care so I would volunteer to drive you to and from the nursing home once a week. I have a lot going on or I would love to do more but if everyone chips in a little - you will be OK. My heart goes out to you and as a mom, I would be so proud of my son if I was in the same situation and he treated me as you do your mom. You are doing a great job, you are strong and a great writer. I actually think you should turn this journal into a book when the happy ending comes - and it's coming.

Ericka Smith
773-516-1434
Amanda-
Your Mom has been doing so well!
I know your visit last night with her was hard. You have been putting a lot of thought into this decision and you are doing what is best for your Mom. Also, you have to remember it is only temporary. Your Mom loves you with all of her heart and even though it will be hard for her to not come home right away, she will be home soon enough! Just remember we are here for you always. We love you and your Mom:) Kari's quote was perfect and I could not agree more.
Love, Jillian

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